Yep, I’m One-in-a-Million

Disclaimer & Release from Liability: I’m middle-aged and this is my first blog post. Yesterday, February 28th, was World Rare Disease Day (WRDD). God-willing, I’ll be celebrating it again next year. Yes, I use the word “celebrating” in regards to rare disease because I had a great time advocating with my dear friend Debbie. I would not have the joy of knowing her if not for the medical news that I received on June 23, 2011 when I was diagnosed with Stiff Person Syndrome (SPS) —–whaaat? It was once termed Stiff Man Syndrome, so Thank God the name was changed some time ago. The current name was not chosen to suit Miss Manners or for political correctness. The simple fact is that more women are living with SPS. Stiff Person Syndrome is a rare and progressive neurological disease that affects one person per million. I’ve also lived with type 1 diabetes since 1982 and been on the insulin pump since 1988. I do not believe in coincidences. Rather, for me, God is always at work in my life whether I realize it or not. Debbie also has SPS, type 1 diabetes and is on the pump. I’m grateful that we have each other because we’re able to belly laugh and swap life notes. Each day I thank God for waking me up and giving me the choice to seek joy and laughter on life’s journey, which is always full of surprises and interruptions.

I CARE ABOUT RARE – World Rare Disease Day

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